Friday, October 28, 2016

Three Months Post Infusion

I actually had a good MS day today.  I was at a conference this week, and did a ton of walking.  I believe that some of my recent improvements were due to steroid regimen, as I knew that I would be over exerting myself the entire week at the conference.  I did end up using my cane every day that I was there because of some extended walks.  I have a feeling that I will probably have some difficult days ahead as that is the normal pattern.  It is 3 months post infusion, and the trends on my chart look to be improving.  I'm not sure if I am scoring myself differently due to the fact that I'm just getting used to my symptoms, or if they are actually slightly improving.  I have had some difficult days, but overall I feel fairly stable.  I verified with my Neurologist today my next MRI, Blood test, and Infusion Schedule.  I hope to see continued improvement, or at least stabilization.


I also recently bought a fitness tracker.  I went with the Samsung Gear Fit 2, as I liked the color screen and features best with this model.  The goal was to start tracking my steps and sleeping habits.  I set a goal for myself to walk 4,000 steps each day, and have met that more than I thought I would.  It also has the ability to track heart rate, water intake, and connect to my smart phone for notifications.  I can tell that my legs muscles have weakened considerably, and atrophy is noticeable on my right leg.  My hope is that the fitness tracker will help motivate me to stay active, and increase my muscle strength in my legs.

As far as Ocrelizumab, I still have no idea if it is working or not.  I look forward to the results of the next MRI to see if there are any changes.  My improvements could be weather related, or just fluctuations in my symptoms.  I'll keep tracking my progress and check in next month.  :)