I got to the Neurologist's office around 8:15am, and did an array of tests to start out the morning. Pretty much the same routine as the last 2 infusions, except for the fact that they deliver the entire dose of 600mg in one day, versus having them split up like the first dose. Eye test, physical from the doctor, EDSS scoring which included the walking test. I was over 3 minutes slower than last time. I had to fill out a questionnaire and do a couple of blood sugar tests. They take your blood pressure, pulse and temperature for some baselines. After all the initial tests, they start an IV and give you 100mg of solu-medrol which is the brand name fo the Methylprednisolone streroid. Then they give you some Tylenol and some Benadryl. There is about a 30 minute waiting period and then they start the Ocrelizumab infusion, which started around 11:30am. During the start of the infusion, they take the blood pressure, pulse, and temperature every 15 minutes to ensure that everything is ok.
Weight: 252
EDSS Score: 4.5
MRI Results: Blind report, no acute findings and nothing new to report.
42.5ml - 29 minutes - 85ml/hr
65ml - 29 minutes - 134ml/hr
84.5ml - 29 minutes - 169ml/hr
100ml - 94 minutes - 200ml/hr
Vitals throughout the day:
The infusion finished around 3:30pm. Temperature remained pretty steady all day with an average of 98.67 degrees. The average pulse for the day was 78.9. They did give me a naproxen equivalent to taking 2 Aleve as a preventative measure. They checked the vitals a few more times and was able to "walk" out the door at 4:35pm. I was at the office for a little more than 8 hours total, with 4 hours getting the infusion.
Not sure if I mentioned this before, but they recommend that you drink lots of water before getting the infusion. I started upping my water intake a few days ago, but also chugged a huge water bottle this morning before everything started. Because of this, you have to bring the trolley and pump that is giving you the drug with you when you visit the restroom. Somewhat awkward, but better than the alternative. No, they do not go into the restroom with you, but they do stand guard outside the door!
Next infusion is June 22nd!
Weight: 252
EDSS Score: 4.5
MRI Results: Blind report, no acute findings and nothing new to report.
Volume and Rates at which the drug is administered:
20ml - 30 minutes - 40ml/hr42.5ml - 29 minutes - 85ml/hr
65ml - 29 minutes - 134ml/hr
84.5ml - 29 minutes - 169ml/hr
100ml - 94 minutes - 200ml/hr
Vitals throughout the day:
| Time | Blood Pressure | Pulse | Temp |
| 10:30 AM | 123/79 | 76 | 98.8 |
| 11:00 AM | 119 / 77 | 70 | 98.5 |
| 11:30 AM* | 128/74 | 70 | 98.4 |
| 120/75 | 70 | 98.4 | |
| 129/74 | 68 | 98.2 | |
| 115/72 | 71 | 98.5 | |
| 119/78 | 82 | 98.9 | |
| 126/68 | 85 | 98.9 | |
| 119/77 | 82 | 98.9 | |
| 121/72 | 88 | 98.9 | |
| 3:44 PM | 121/74 | 86 | 98.8 |
| 134/76 | 89 | 98.8 | |
| 4:30 PM | 119/79 | 89 | 98.7 |
| Average: | 78.9 | 98.67 |
The infusion finished around 3:30pm. Temperature remained pretty steady all day with an average of 98.67 degrees. The average pulse for the day was 78.9. They did give me a naproxen equivalent to taking 2 Aleve as a preventative measure. They checked the vitals a few more times and was able to "walk" out the door at 4:35pm. I was at the office for a little more than 8 hours total, with 4 hours getting the infusion.
Not sure if I mentioned this before, but they recommend that you drink lots of water before getting the infusion. I started upping my water intake a few days ago, but also chugged a huge water bottle this morning before everything started. Because of this, you have to bring the trolley and pump that is giving you the drug with you when you visit the restroom. Somewhat awkward, but better than the alternative. No, they do not go into the restroom with you, but they do stand guard outside the door!
Next infusion is June 22nd!
