Today is infusion number 2, which means I get the second dose of 300mg of Ocrelizumab. No changes in the past couple of weeks since the first infusion. Basically, I don't feel any different but know that this isn't suppose to be a quick fix. It will take time for me to see results, if any. Schedule today is almost the same as the last visit, but without the EDSS tests. I do not have to come back for my next infusion for 6 months. Before the infusion starts, the Neurologist does a physical exam and starts taking vitals on a schedule. I did nap a bit more today than I did last time, and the Benadryl makes you sleepy. The infusion machine beeps when it is done with each cycle, so the naps were short.
Last time I brought a full backpack of things to do. I've traveled light today, and only brought my iPad, smartphone, and a lunch bag. I realized that I'm perfectly content with just surfing the Internet all day, and don't need to get any "work" done. I was able to drive myself home, and a few hours later, I still feel completely normal.
Today's Vitals:
Weight: 253.6
Blood Pressure and pulse readings throughout the infusion cycle:
Last time I brought a full backpack of things to do. I've traveled light today, and only brought my iPad, smartphone, and a lunch bag. I realized that I'm perfectly content with just surfing the Internet all day, and don't need to get any "work" done. I was able to drive myself home, and a few hours later, I still feel completely normal.
Today's Vitals:
Weight: 253.6
Blood Pressure and pulse readings throughout the infusion cycle:
- 116/77 - 62 - 97.4
- 121/81 - 57 - 97.9
- 126/71 - 62 - 97.4
- 142/78 - 70 - 97.4
- 130/72 - 67 - 98.0
- 119/73 - 72 - 97.6
- 125/68 - 74 - 97.6
- 120/71 - 72 - 98.2
- 122/74 - 69 - 98.5
- 127/72 - 75 - 98.5
- 138/84 - 76 - 98.2
Thank you for sharing your journey with Ocrevus. I hope your condition improves! Best regards from Norway!
ReplyDeleteThank you! I'm optimistic!
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